Thursday, October 1, 2009

National Down Syndrome Awareness Month!

Hey everyone! In case you haven't heard it is National Down Syndrome Awareness month and the challenge at http://unringingthebell.typepad.com/ is 31 posts about Trisomy 21! I have never done this before so I think it will be fun! I have been out of practice with blogging on a regular basis with all the drama in my life this summer. It will be a good way to get back in the routine and share stories, information, and vent about Ds. So, for the first day I thought I would post a link to a video about mic-key buttons. I know a lot of Ds kids don't have one but there are a lot of kids that do. Since it has become my source of stress lately, I thought it might be worthwhile to share with everyone just exactly what I have to go through every time one of these little buggers comes out. Oh and not to mention, what a stressful morning today was...mic-key button number 4 failed and came out. So I had to put in mic-key button number 5 and I put in another call to good ol' Kimberly Clark to ask for another replacement, which they will be sending by the way. I also called the GI department at the clinic and moved Lily's appointment up to Monday instead of October 12th just to make sure something isn't going on with her that may be causing the buttons to fail. Click on the link below to view a short video about how to change a mic-key button (this video is from you tube and I thought it was done very tastefully and is very informative) and Happy Fall, Happy October, and 3 cheers for Down syndrome awareness!

http://www.youtube.com/watch?v=Mn4ePSBiCTk&feature=related

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