Thank You Everyone! We Love You!

I would like to start out today by saying "Thank You" so much to everyone that has made a donation to Liliana, or helped out in one way or another. We have been so fortunate to have cash donations, help with childcare for Gwyneth, restaurant gift cards, boxes of food, and gas cards. The generosity of so many people has just blown my mind! We are so blessed and it has helped restore my faith in the fact that God will supply all my needs. We also are thankful for all those that have faithfully been praying for Liliana. Those faithful prayer warriors out there, and you know who you are, should be commended for your willingness and diligence in praying for Liliana on a regular basis. God recognizes your faithfulness and we do too! Thank you! Now about Liliana...I got to the hospital a little late today because I had to take care of a few errands and the nurse said that Liliana was beside herself this morning. Just crying and wiggling and carrying on. She had to give her some chloral to calm her down. Part of the problem is they are trying to ween her off of the morphine and she obviously has become a bit addicted to it since she has been in here so long. They have not changed any of her vent settings, but they did remove her folly (sp?) catheter. She has been having problems with her belly swelling up and not tolerating her feeds. They have stopped and started her feeds several times over the past few days. They are not sure exactly why she is having so much trouble but they have put her on a med called regulin (sp?) to help her digestive tract move things along. All her blood cultures for the infection continue to come back negative so we are thrilled (knock on wood)! They were even able to take her off of some of her antibiotics since the cultures have been coming back negative. YEAH! I hope I won't have to eat my words since I am posting this on my blog. The surgeon Dr. Mavourdis was in today to see her and so was our favorite cardiologist Dr. Qureshi. Dr. M said that her heart still looks good we just have to get her to start tolerating her feeds. Dr. Q pretty much said the same he also added that they would be checking her thyroid as well, to make sure everything is working ok because that could be contributing to her digestive problems. All in all Liliana is making progress slowly, but surely.