A New Line, A Fresh Start.

On New Year's Eve morning I received a call from the PICU that Dr. Mummtaz felt that Liliana's line they just put in on Friday, December 26th needed to come out because she had spiked a fever again overnight. There was some question about taking it out on the 30th because she started to have a red line appear on her right thigh along the surface of where the line was put in. They called to get our permission. This time they decided to take her into the OR to put in the new line where as the last one they did right in her room in the PICU. Over the last few days she has gradually been doing better. She is still having fevers but not as frequently. They started her feeds back up and she is tolerating well. She has been having some trouble with her blood pressure and they have had to turn her Nipride on and off over the past week as they are trying to regulate it. As of today it is off. She has been pooping regularly even though her belly looks like a Buddha's. LOL! The staff does not seem too concerned. In fact she has had some really BIG poops that had the nurses giving her a bath to get her cleaned up. The nurses love to make bows and put them in her hair. It cracks me up cause when I come in each day I never know what they may have in her hair for the day. So far none of the cultures have come back positive so we will take that and continue to take things slow and in baby steps. Things just have to continue to get better.