Wednesday, January 7, 2009

It's a Mystery

Well, today we had a photo shoot with a group called "Flashes of Hope." They are a non-profit organization that takes pictures of chronically ill patients. Though Liliana does not fall into that category necessarily the social worker here at the hospital thought that we may be interested in participating in something like this because she has been here so long. They had me pose with Lily, leaning over the bed and putting my face by hers. They also did pics of me holding her little hand. It was so sweet! I hope that they come out good. The nurses here say that they do a good job so we will have to wait till they come in the mail. Lily had a much better day today than yesterday. Her heart rate has been much lower today as is her blood pressure. They have successfully been weening her off of the vent so if everything goes well they may extubate her tomorrow sometime. I'm not getting my hopes up too high though. One thing that was interesting was when the surgeon Dr. Mummtaz came in today and told us that her recovery has been such a mystery to them. Why does she do so well right after surgery and then all of the sudden everything goes bad? They can't understand why her mitral valve starts to leak so badly. They are still hoping that all will go well after she comes off the vent because even though the valve may be leaking more she still may be able to tolerate without having to go in and give her a replacement. We are still crossing our fingers that the echo reading was a fluke and that her valve is still ok, since she had a great day today!

5 comments:

My name is Sarah said...

This is Joyce. Liliana is a little cameleon. I can't wait to see the photos. I am so happy they are so understanding with pictures now.

I wrote a stupid little tidbit on your husband's blog today about speeding. When you get a chance go over and read it. I got three tickets, boom, boom, boom and each was over $100 which as you know now that you are near broke - that's the last thing we needed.

We'll be praying for a good night.

Shoshana Socher said...

Hi Kim,

I'll see you Wednesday, when we're there for Bayla's surgery. It's an intense time, but I guess, who is telling who?

Kim Rees said...

Shoshana,

Can't wait to see you guys though I wish it were under different circumstances. Praying that everything with Bayla will go well on Wednesday. Talk to you soon.

Tricia said...

Kim,

I've been reading your blog for several weeks. Our daughter only required one OHS, but she spent almost 4 months in the hospital on and off vent due to CHF. I can only imagine how difficult this is for you guys. Please continue to keep us posted and I'm praying for successful extubation tomorrow.

Trish

my family said...

So nice...hope the pictures come out and you share them for us to see...Praying for a great tomorrow for you and your family