Sunday, Sunday!

Oh, here I sit another Sunday morning and we are not able to go to church because Liliana is an infection risk! Bummer with a capital B! It is so dreary outside today too! We were spoiled here the last two days with the warmer temperatures and hints of sunshine at times. Well, hopefully that means spring is around the corner, right? On a different note...our gastro appointment on Friday went very well. Dr. Mohr was so pleased at how good she looks! We are going to continue with the 65cc feeds 4 times a day and over the next couple of weeks try to increase it to 70cc and then her night time continuous feeds will stay the same. She also talked to me about how much Liliana is taking by mouth. I told her that I have been working with her at least 2 feeds a day with trying to get her to take at least a few teaspoons of stage 2 baby foods by mouth. She is doing ok, but not as good as she should be yet. She then told me about the dreaded thing that I did not want to hear. "Well, if she continues to struggle to eat by mouth we will have to consider putting a g-tube directly into her stomach." Whoa! Wait! No! Not my Liliana! This is what I'm saying in my head. After listening to her talk some more she told me that we will give Lily at least 3 more months to prove herself. If by June she is still not eating by mouth than she will have to come in for the g-tube. It sounds fair?! So now I am talking to Lily and whispering in her ear that she needs to eat! Over and over again I repeat those words because if some way we could avoid having to get the tube it would be great! If we have to life will not be a total bummer, actually she made some good points about how a g-tube is much easier for the child and the parents than an NG tube. It all makes perfect sense, but being a parent and wanting her to succeed makes me say, "Please Lord let her catch up and start eating like a big girl!" So for all you prayer warriors out there please pray specifically that she will start to get the hang of eating by mouth in the next 3 months and we won't have to go through another surgery, even though it won't be as big a deal as the open heart surgeries. On a different note, Bill has been painting our dining room and he finished the ceiling yesterday. Man, what a difference! He and Gwynny went to Home Depot this morning to pick up the colored paint for the walls so he can start painting today! I will have to post a before and after pick for those of you who may be interested. Working on painting and fixing up our house has been very therapeutic for us, especially Billy. Since we are stuck in our house for the time being it gives us something to be proud of and get excited about! Believe me it has been a long time coming that this place has needed a facelift! Well, hope everyone has a super Sunday and I hope the time change hasn't messed with too many people! Later!