Slow but steady wins the race!

I'm sure that many of you are wondering why I haven't posted in awhile. Well, that's because I feel like sometimes I am just repeating the same things I already talked about. As the saying goes, "No news, is good news." We did however get slammed with some bad news today from Liliana's speech therapist. She told me she has resigned and oh yeah this is her last week. Thanks for giving me a little notice. She assured me that Liliana is a top priority and that they will get her a replacement very quickly. I hope she is right because I would hate to see a huge gap between services and then Lily is the one that suffers.
She is by the way making slow but steady progress with the eating issues. She is eating some cereal, probably about 1 teaspoon and some fruit or veggies, again about a teaspoon 2 to 3 times per day. The speech therapist and the OT have given me tips to help with getting her to take food by mouth. Mainly it's using the nuk (not sure on the spelling) and or my fingers to the sides of her mouth and then push against her tongue to get her to bite down. This in turn will help her to control the movements of her tongue and it will strengthen her mouth muscles. Loads of fun!
The only other excitement I had today was taking some of the toys that Liliana got for Christmas out of their boxes so we (Gwynny and I) could take a look at them and see which ones we wanted to use to play with Lily. I know, Christmas was almost 3 months ago and I am just now taking them out of their boxes. It's that whole age appropriate thing, also the fact that she was in the hospital until February 18th, and then I thought who cares if it says 18 months on the box, and my child is only 9 months and has Ds, it makes noise, it's fun, and entertaining, what the heck! So out came Elmo Live from his box, I'm surprised he didn't have dust on him. He is soooooo funny! I put him on the floor by Lily and she just stared at him but I think she was more entertained by her sister dancing with him. What a hoot! That was ok. I definitely need to get past the stupid negative thinking that my child cannot do certain things now. I read about this all the time on other people's blogs and I know it's just stereotypes and junk that other people have decided is acceptable for a child with Ds, but so many babies out there in the blogosphere are proving those statistics wrong. I need to start setting my expectations for Liliana a lot higher than I do. Like when the OT and PT come here and tell me how wonderful she is doing I need to internalize that and rejoice in the fact that she is truly doing well. Instead, I usually say, "Really? You think so?" Stupid answer. Of course she is doing well. I just need to get to that point that I actually believe it so I can believe in my beautiful Liliana and support her no matter what happens.