Wednesday, November 4, 2009

God Had a Plan


Liliana after her 1st open heart surgery


Liliana today!

Today marks the 1 year anniversary of Liliana's first open heart surgery to repair a complete AV canal defect. I remember waking up really early with an empty feeling in the pit of my stomach. I remember waiting for them to come and take her out of my arms and how I broke down and cried because I was so scared of what might happen. I remember thinking...this is all just a dream and I'm going to wake up and everything will be as it was but it wasn't a dream. It was reality. Reality that I had to face and come to grips with.

I didn't have a blog at the time of her first surgery so I don't even have any way of going back to relive the exact thoughts I had that day. Bill was blogging at the time but he isn't the type to express how he feels through his blog. Here is a link to his blog to read more about those first few weeks in the clinic. http://wsrees.blogspot.com/2008/11/surgery-day_05.html It did bring back a flood of memories though when I read his posts from those first few days in the hospital. Oh the emotions we felt! Little did we know that what seemed like a routine surgery for most would turn into a 3 1/2 month hospital stay which included not 1, but 3 open heart surgeries!

I could go on forever about everything that happened. We are so grateful for all the staff, nurses, and doctors at the Cleveland Clinic that took such good care of our Lily. They cared for her and loved her just like she was their own. Their generosity and concern for Bill and I will never be forgotten. They are some of the best people in the world.

I can honestly say that through this whole experience God had a plan. I have blogged about this before and it's true. They say that everything happens for a reason. I know that God used Liliana's hospital stay as a way to bring our family closer to him. He connected us with our wonderful friends Scott and Kathie and in turn we were introduced to our church, the church we now attend and are active in. Our church played a key role in supporting us through this whole thing. They provided food, donations, and most of all prayers and support for our family above and beyond what we already were getting from our own families. He used those around us to bring us back to him to focus our attention on what really matters.

Do I believe in miracles? YES, I do! Because my daughter Liliana is a living miracle! She is a testimony of God's healing power and his neverending love for us! He has taught me through Lily to love again, unconditionally. He has taught me to trust in him and believe that he is in control and that he will supply all of my needs according to his riches in glory.

I had doubts and I had fears but I am here to say that with the help of the Lord I have been able to overcome them. I still have my faults and I still doubt at times and have fears but I know that it will all work out. God will guide and lead the way if I only believe. He has given Liliana to us for a reason. He wanted to show us just how much he loves us, just how much he cares and he did it all through the life of our sweet little girl. Thank you Lord for her life! Thank you Lord for bringing our family closer to you. Thank you for letting us know that the future is bright for Liliana and that we don't have to be afraid of Down syndrome. She is a blessing in our lives and we cherish her with all our hearts. Thank you for opening our eyes this past year and helping us to learn what the true meaning of love is.

10 comments:

Lacey said...

I wish I had a blog back when Jax had his 4 month hell stay in the hospital. Even though a lot was bad, it would have been nice to be able to look back and see when things happened. Even little things like picc line placements and other tests.

Cathy said...

Happy heart day sweet Lily. Although this day was probably one of the hardest ever, it's now a reason to celebrate. Nobody quite understands it like we mommies who have been through it (daddies too).

I remember following your Lily's story even before you and I "met", Kim (Thanks to Sarah and Joyce's blog). I'm glad we have become internet buddies. It never ceases to amaze me how many new friends we both have made because of our Lilys.

God bless sweet Lily and your beautiful family!!!

Jennie said...

Happy heart day, Lily!

Laurie said...

Happy Heart Day, Sweet Girl! Ah, she and Dylan share such a special anniversary...

((Hugs))

Kelli said...

Happy 1 year anniversary! My how you have grown. What a trooper.

datri said...

Happy Heart Day! Lily looks amazing!

Heidi said...

Lily is a miracle! I just loved reading about how God drew you and your family closer together and closer to Him through your experiences with Lily. He is an amazing God and knows the best way to get our attention and show us how much He cares about us.

ch said...

it sounds like your liliana lived out some of the worst fears i had for lc when she had her av canal repair...it's good to be reminded of the strain and stress we were so inexplicably and mercifully spared from...thanks for continuing to share your lily with us...she gives so many of us so MUCH to celebrate!

Sasha@ Blyssfulhealth said...

Happy Heart Day Lily. Wow you have come so far. Yes she is a miracle. It sounds like an emotional day for you. Glad she is here and that you are able to share all of your learnings from your experience.

I will never forget all the details of Wysdom's surgery. I wonder if all the emotions will always be there. I started a care page while in the hospital of Wysdom's journey. You could always write a one year post surgery detailed account of what you remember if you wanted. You could always look back on that journal.

Anywasy just wanted to say that I am so happy for you and your family.

To Love Endlessly said...

how emotional, to look at the pictures of then & now. and reading the emotions too... I'm so thankful that God is working in your life & it Lily's. He is an amazing father and he is taking care of your entire family, no doubt about that!